Shelly Myers' Baby Boy Milo

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Read Shelly's Story here:
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My husband and I recently buried our 3-week old little boy Milo.
Not only was Milo's short life miraculous, heartbreaking and beautiful, but the way he got here was equally amazing. Milo was born because of IVF. IVF that we won on the radio. From a random contest that we heard about one day while driving to church.
We went through our first cycle and got 2 strong embryos. We transferred the first in December 2017. We found out the day after Christmas that it didn't take and we weren't pregnant. Not the best Christmas on record. We transferred the second, our last embryo, the following February. We found out right around Valentine's Day that it also didn't take and we were again not pregnant. Boy do we know how to ruin a holiday or two.

We started over with a fresh IVF cycle that spring and the day before we were supposed to retrieve my eggs, we found out that my blood work showed a huge drop in my hormones and that my eggs wouldn't be viable... so we had to terminate the cycle. We decided to take a break and try to get a little normalcy back (if that's even possible).
In the fall of 2018 we started over again and ended up with 5 healthy embryos. We transferred the best one and found out we were safely pregnant. With our Milo. It had been 3 years of actively trying and we were finally pregnant. We went to one of those little "early ultrasound" places to find out gender. We did the big gender reveal with friends and family who had been invested in our family for so long and found out our baby was a boy. I'd always wanted to be a boy mom, so basically all my dreams came true in one beautiful, blue moment.
At our 20 week ultrasound the technician said everything looked great. We were finishing up the scan when she noticed one thing looked a little off. She got quiet. She scanned more. And then we started to worry. We asked what was wrong, and she said Milo's heart and stomach weren't lined up like they were supposed to be. She called in the doctor who confirmed things didn't look quite right, and we were scheduled to see a specialist a couple weeks later.

When we went to our 22 week ultrasound, we were told that Milo looked like he had Trisomy 18. I had no idea what that was but was quickly informed that babies with T18 just don't make it. Most usually live minutes to hours after delivery, if they can make it to delivery. Our doctor told us Milo had a lot of things that just didn't look right on that little screen. She was kind. She hugged us. She may have even cried a little... I can't remember. But my husband and I sat in that room and cried for what felt like hours. We were given the conversation about terminating my pregnancy but we could see our little man wiggling around on the ultrasounds and could see his heartbeat strong and steady and wanted to give him every chance we could... we wanted to enjoy being parents as long as we could.
For the next four months we prayed harder than we ever have. Because our journey to get Milo had been so public, we shared the news of his rough road ahead with our tribe. And boy did they show up. We received so many texts, calls, letters and messages cheering us on... cheering Milo on.
When I went in to have Milo, he was too comfy to come out. I honestly don't blame him - life was going to be hard once he got here. I was in labor for 60 hours at the hospital and in active labor for 14-16 (I can't remember a ton of specifics because I have literally never been more tired in all my life). After going from 9 cm to 7 cm and back to 9 cm (this is not normal... but not much was about me and Milo), the team finally took Milo via c-section. He was delivered in a special operating room because the doctors knew he wouldn't be able to breathe once he was delivered. There was a little window that the team passed him through that went straight to the NICU so that as soon as he was born they could get him on a ventilator and try to help him breathe.
I never heard my son cry.
While I was getting stitched up, my husband got called to that little NICU window. The lead doctor told him Milo wasn't looking good and would probably only live for 4 hours or so. The nurses had taken a few pictures on my husband's phone so that we could have something to remember Milo by. My husband brought his phone over to show me the pictures while I was still laying on the operating table. He tried to act tough but finally broke down and said our boy wasn't going to make it. We both were taken to the NICU to see Milo. He was perfect. He was already intubated and was struggling to get the oxygen he needed. But after a visit with Mom and Dad, Milo rallied and found a second wind. That was our mighty boy. His lungs opened a little, and he was able to get his stats to a point that the doctors were happy with. They rushed him over to Primary Children's Hospital and put him on a life support machine called ECMO that's supposed to help with lung development. In non-doctor language, the machine basically oxygenates your blood for you so your lungs don't have to. Then they can just work on developing.

Milo was on ECMO for 19 beautiful days. He went through multiple surgeries and procedures to try to repair all of his broken insides. He made it through the procedures like a champ, and the medical team was always surprised by our Mighty Milo. Because our journey to parenthood had been so public, we literally had thousands praying for Milo. We tried to share what we could on social media because so many people were invested... but it was also hard to think about opening up such sacred moments to the world.
There is so much more I could say about those three weeks in the hospital with our son. They were beautiful. They were sacred and holy. They were perfect.

We cheered Milo on every step of the way - so did all the NICU nurses that he had swooned. And so did our tribe of thousands. They continued to pray and send notes and cards and everything else.
Milo's last day with us was also a first day - the first day we were able to really hold our son. The first day we were able to see his face without all the extra wires and tubes. It was so amazing. We held Milo all day long. We sang to him, read to him, fed him... the nurses "oohed" and "ahhed" over him. They all turned into mini moms snapping pictures and videos. In Milo's last few hours, they took out his breathing tube - his lungs collapsed - but he was still alive and doing fine thanks to the ECMO machine. I think I'll forever have a love/hate relationship with that thing. I remember seeing Milo's full face for the first time when they took that tube out and all the tape off. I'd never seen something more beautiful in my entire life.
Our last day with Milo was perfect. He was a happy, squirmy boy - and for the first time, we felt a little bit like regular parents... just holding their son.



When we finally had to turn off the ECMO machine that was keeping our son alive, my husband had to make the call. I just couldn't do it. How do you tell the team that the machine giving your boy life can't keep going? That you're ready to let him leave? We held him as life slowly left his little body. Our Mighty Milo was finally done fighting.
I thought I'd seen the purest, truest love in so many remarkable moments before... but looking out at all those faces I love who had come to mourn my son and celebrate his life was truly humbling. And I can honestly say that I have never felt so loved.
My husband and I are still dealing with the grief on a daily basis... it's been almost four months since that last perfect day with him. Four months since I held my son for the first and the last time. Four months doesn't seem long, but I feel like I've lived a lifetime.
The Mighty Myers (Shelly, Jason and Milo)



☀️ CLICK HERE TO BUY THE BEST SOCKS ON THE PLANET TO HELP WOMEN WITH INFERTILITY! A portion of every single sale will go to an incredible woman experiencing infertility. They make the BEST gifts for women experiencing infertility to remind them they are loved OR to wear to your own appointments while working hard to grow your family to remind you that you have this community of women linking arms with you. You are incredible, sister!
CLICK HERE to join our safe, private Facebook group to meet other incredible women who are walking your path. ☀️
To read Mikelle Kennedy's IVF story, click HERE
Thank you for sharing your beautiful baby boy with us. Milo could not be any cuter. Praying continued healing for you now.
Sarah on
Shelly your story is absolutely beautiful, heartbreaking, but most of all it is heroic. You and Jason are warriors. You have relentlessly fought for your family and for Milo. Your sacfrices brought him to life and gave him the 19 beautiful days he got to spend with you and you with him. Milo was a mighty warrior that fought to spend those days with the most loving and caring parents he could hope for. Your reunion with him someday will be celebrated by all of us.
Rebekah on